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this post was submitted on 04 May 2025
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I can’t imagine having to tell a young person they were a carrier for Huntingtons. That sounds like a brutally difficult thing to do.
Anecdotally - I’ve heard that a lot of genetics classes won’t have students test themselves, not just because “surprise! you are extremely likely to die of cancer” but also “surprise! you were assigned female at birth but are XY” wasn’t appropriate in a class. Can you speak to that?
That “do you really want to know” question is a lot harder than people think - I did 23andme a few years ago and found out that my mother had been lying about my father for almost thirty years. I was apparently enough Native American the entire time, I could have qualified for college scholarships :(